Rare Disease Day 2026: Expert Decodes The Hidden Crisis And Call For Strategic Action
Under a scientific, ethical and transparent approach, stem cell banking is a considerate move towards sustainability.
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Under a scientific, ethical and transparent approach, stem cell banking is a considerate move towards sustainability.
Rare disease day is observed annually on the last day of February to spread awareness on certain conditions that can impact on patients lives.
A diagnosis of a rare disease can be overwhelming, but it is not the end of the journey. It is often the beginning of understanding and support.
Grey's Anatomy star Steven W. Bailey, whose fans have poured a lot of love into the show recently, shared on X about his Neuromuscular Disorder diagnosis, which came as a surprise to many.
To monitor the ongoing situation, health officials are on high alert and the Tacoma-Pierce County Health Department announced a collaboration with the Centers for Disease Control and Prevention (CDC) and the Washington State Health Department (SHD) to increase wastewater testing.
Doctors are advising parents to remain alert, as several children across the United States have developed the life-threatening illnesses called Acute Necrotizing Encephalopathy (ANE) that cause brain swelling during the flu season.
A 25-year-old man in Japan was diagnosed with rare 'Dropped Head Syndrome' after excessive smartphone use. Doctors warn youth about tech neck and posture damage.
This first-of-its-kind case in the world was tricky to handle; the boy already suffered from preexisting health problems that needed to be managed before the bone marrow transplant. Read on...
Get into the details of the central government's National Policy for Rare Diseases which offers financial support of Rs 50 lakh per patient. New diseases have been added to the list of rare diseases.
There is no cure for Moya Moya disease. Revascularization surgery is often recommended to slow progression of the disease and reduce the risk of complications.
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Ayushmann Khurrana On Vertigo Disease: Treatment And His Struggle For Relief
Doctors performed a bilateral breast reduction surgery on the woman and removed approximately 1000 gm from each side of the breast. What is Gigantomastia explained here...
Recently, doctors at a Delhi hospital saved life of a three-year-old toddler suffering from Wolff-Parkinson-White Syndrome, using minimally invasive procedure. Read to know more about this condition...
This man is suffering from a rare sleeping disorder known as Axis Hypersomnia, which has affected his lifestyle as well as well-being. Read to know more about this condition.
A four-month-old baby has been diagnosed with the rare disease Fibrodysplasia Ossificans Progressiva (FOP) which affects only 1 in 2 million people. Read to know everything about this genetic condition.
Great relief for parents of 5-month-old Teera Kamat, who is suffering from a rare genetic disease. PM Modi has waived off custom duty worth Rs 6 crore on a life-saving drug after request from Former Maharashtra Chief Minister Devendra Fadnavis.
The annual cost of treatment for Hunter Syndrome in India is estimated to cost between 80 lakh to one crore for one patient. Read on to know more about this rare disease.
Progeria is a rare genetic condition that causes accelerated aging in childhood. Read on to know more about this disease that affects 1 in 4 million newborns worldwide.
Under a scientific, ethical and transparent approach, stem cell banking is a considerate move towards sustainability.
Rare disease day is observed annually on the last day of February to spread awareness on certain conditions that can impact on patients lives.
A diagnosis of a rare disease can be overwhelming, but it is not the end of the journey. It is often the beginning of understanding and support.
Grey's Anatomy star Steven W. Bailey, whose fans have poured a lot of love into the show recently, shared on X about his Neuromuscular Disorder diagnosis, which came as a surprise to many.
To monitor the ongoing situation, health officials are on high alert and the Tacoma-Pierce County Health Department announced a collaboration with the Centers for Disease Control and Prevention (CDC) and the Washington State Health Department (SHD) to increase wastewater testing.
Doctors are advising parents to remain alert, as several children across the United States have developed the life-threatening illnesses called Acute Necrotizing Encephalopathy (ANE) that cause brain swelling during the flu season.
A 25-year-old man in Japan was diagnosed with rare 'Dropped Head Syndrome' after excessive smartphone use. Doctors warn youth about tech neck and posture damage.
This first-of-its-kind case in the world was tricky to handle; the boy already suffered from preexisting health problems that needed to be managed before the bone marrow transplant. Read on...
Get into the details of the central government's National Policy for Rare Diseases which offers financial support of Rs 50 lakh per patient. New diseases have been added to the list of rare diseases.
There is no cure for Moya Moya disease. Revascularization surgery is often recommended to slow progression of the disease and reduce the risk of complications.
Doctors performed a bilateral breast reduction surgery on the woman and removed approximately 1000 gm from each side of the breast. What is Gigantomastia explained here...
Recently, doctors at a Delhi hospital saved life of a three-year-old toddler suffering from Wolff-Parkinson-White Syndrome, using minimally invasive procedure. Read to know more about this condition...
This man is suffering from a rare sleeping disorder known as Axis Hypersomnia, which has affected his lifestyle as well as well-being. Read to know more about this condition.
A four-month-old baby has been diagnosed with the rare disease Fibrodysplasia Ossificans Progressiva (FOP) which affects only 1 in 2 million people. Read to know everything about this genetic condition.
Great relief for parents of 5-month-old Teera Kamat, who is suffering from a rare genetic disease. PM Modi has waived off custom duty worth Rs 6 crore on a life-saving drug after request from Former Maharashtra Chief Minister Devendra Fadnavis.
The annual cost of treatment for Hunter Syndrome in India is estimated to cost between 80 lakh to one crore for one patient. Read on to know more about this rare disease.
Progeria is a rare genetic condition that causes accelerated aging in childhood. Read on to know more about this disease that affects 1 in 4 million newborns worldwide.
Walking corpse syndrome is an extremely rare condition with only about 200 cases worldwide. Read on to know more about this strange condition.
Ayushmann Khurrana On Vertigo Disease: Treatment And His Struggle For Relief
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