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Home / Topics / Rare disease

Rare disease


  • Devendra Fadnavis thanks PM Modi for tax relief on life-saving drug for 5-month-old Teera

    Devendra Fadnavis thanks PM Modi for tax relief on life-saving drug for 5-month-old Teera

    Great relief for parents of 5-month-old Teera Kamat, who is suffering from a rare genetic disease. PM Modi has waived off custom duty worth Rs 6 crore on a life-saving drug after request from Former Maharashtra Chief Minister Devendra Fadnavis.

  • Two brothers with Hunter Syndrome move Delhi High Court seeking free treatment

    Two brothers with Hunter Syndrome move Delhi High Court seeking free treatment

    The annual cost of treatment for Hunter Syndrome in India is estimated to cost between 80 lakh to one crore for one patient. Read on to know more about this rare disease.

  • Bizarre: Progeria can make a child of 8 look like an 80-year-old

    Bizarre: Progeria can make a child of 8 look like an 80-year-old

    Progeria is a rare genetic condition that causes accelerated aging in childhood. Read on to know more about this disease that affects 1 in 4 million newborns worldwide.

  • Bizarre: Walking corpse syndrome will make you believe that you are a zombie

    Bizarre: Walking corpse syndrome will make you believe that you are a zombie

    Walking corpse syndrome is an extremely rare condition with only about 200 cases worldwide. Read on to know more about this strange condition.

  • Bizarre: If you have Proteus syndrome, you may have grooves in your skin and disproportional limbs

    Bizarre: If you have Proteus syndrome, you may have grooves in your skin and disproportional limbs

    Proteus syndrome, named after the Greek god Proteus, who changes his shape to elude capture, is an extremely rare disease with maybe only about 500 cases around the world.

  • Bizarre: Charles Bonnet Syndrome can take you to a fantasy world of weird animals and light flashes

    Bizarre: Charles Bonnet Syndrome can take you to a fantasy world of weird animals and light flashes

    There are many strange diseases in the world. One of them is the Charles Bonnet Syndrome where you enter a world of fantastic hallucinations.

  • Today is World Rare Disease Day: Research brings new ray of hope for patients of rare conditions

    Today is World Rare Disease Day: Research brings new ray of hope for patients of rare conditions

    Today is World Rare Disease Day, which seeks to raise awareness and educate people about conditions that affect maybe 5 people in a population of 10,000.

  • This immunotherapy combination shrinks rare, neuroendocrine: Study

    This immunotherapy combination shrinks rare, neuroendocrine: Study

    According to a new study, after using a combination of ipilimumab (6 weeks) and nivolumab (2 weeks) the results showed that 42 per cent of patients with the high-grade form of neuroendocrine carcinomas saw their tumours shrink partially or completely post treatment.

  • The Tree Man from Bangladesh needs more surgeries

    The Tree Man from Bangladesh needs more surgeries

    'Tree man' syndrome is a condition in which extreme wart-like growths appear across the body which may lead to cancer later in life.

  • Your pet cat can give you this rare bacterial infection

    Your pet cat can give you this rare bacterial infection

    Watch out cat lovers. Here's all you need to know about this rare bacterial infection that you may contract from your pet cats.

  • Delhi: 71-year-old gets treated for a rare brain disease

    Delhi: 71-year-old gets treated for a rare brain disease

    A new technique for restoration of brain circulation and prevention of catastrophic stroke at a Delhi hospital has saved the life of a 71-year-old.

  • Sushi: Man undergoes amputation after he catches a rare 'flesh-eating' infection

    Sushi: Man undergoes amputation after he catches a rare 'flesh-eating' infection

    If you love having raw seafood and suffer from a few health conditions, you might want to know this- A 71-year-old caught an infection hours after he had his favourite sushi. This infection led him to get his hand amputated.

  • Gurgaon: 2-year-old from Tajikistan gets treated from a rare and complicated condition

    Gurgaon: 2-year-old from Tajikistan gets treated from a rare and complicated condition

    Baby Maryam from Tajikistan was born with a condition that caused her skull to swell. This complicated condition was treated at Fortis Gurgaon.

  • Have you heard about ‘Gaucher?’ Here is all that you need to know about this rare disease

    Have you heard about ‘Gaucher?’ Here is all that you need to know about this rare disease

    It is a genetic condition wherein waste material gets deposited and builds up in different organs and bones of the body.

  • Reviewing first year of National Policy for Treatment of Rare Diseases

    Reviewing first year of National Policy for Treatment of Rare Diseases

    The Ministry of Health & Family Welfare (MoH&FW), in 2017, took a landmark step by approving the National Policy for Treatment of Rare Diseases.

  • ORDI appeals to state governments to implement rare disease policy

    ORDI appeals to state governments to implement rare disease policy

    Organisation for Rare Disease India (ORDI), a non-profit patient association focuses on improving the health of patients with rare diseases.

  • Mystery behind rare bone disorder cracked

    Mystery behind rare bone disorder cracked

    A new research has found that a certain gene mutation causes 'dripping candle wax' bone disease.

  • Irrfan Khan reveals that he is diagnosed with neuroendocrine tumour

    Irrfan Khan reveals that he is diagnosed with neuroendocrine tumour

    Bollywood star Irrfan Khan on Friday revealed he has been diagnosed with neuroendocrine tumour and is going out of the country for treatment.

  • Irrfan Khan's wife says her partner is facing his health scare -- a

    Irrfan Khan's wife says her partner is facing his health scare -- a "rare disease" -- like a "warrior"

    Like Irrfan, his wife, producer Sutapa Sikdar, too has urged people not to speculate about his condition.

  • Mumbai: Doctors pull out 760g of hair from woman's stomach

    Mumbai: Doctors pull out 760g of hair from woman's stomach

    She was addicted to pulling out her own hair and eating it.

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