Rare disease

Devendra Fadnavis thanks PM Modi for tax relief on life-saving drug for 5-month-old Teera

Great relief for parents of 5-month-old Teera Kamat, who is suffering from a rare genetic disease. PM Modi has waived off custom duty worth Rs 6 crore on a life-saving drug after request from Former Maharashtra Chief Minister Devendra Fadnavis.
Two brothers with Hunter Syndrome move Delhi High Court seeking free treatment

The annual cost of treatment for Hunter Syndrome in India is estimated to cost between 80 lakh to one crore for one patient. Read on to know more about this rare disease.
Bizarre: Progeria can make a child of 8 look like an 80-year-old

Progeria is a rare genetic condition that causes accelerated aging in childhood. Read on to know more about this disease that affects 1 in 4 million newborns worldwide.
Bizarre: Walking corpse syndrome will make you believe that you are a zombie

Walking corpse syndrome is an extremely rare condition with only about 200 cases worldwide. Read on to know more about this strange condition.
Bizarre: If you have Proteus syndrome, you may have grooves in your skin and disproportional limbs

Proteus syndrome, named after the Greek god Proteus, who changes his shape to elude capture, is an extremely rare disease with maybe only about 500 cases around the world.
Bizarre: Charles Bonnet Syndrome can take you to a fantasy world of weird animals and light flashes

There are many strange diseases in the world. One of them is the Charles Bonnet Syndrome where you enter a world of fantastic hallucinations.
Today is World Rare Disease Day: Research brings new ray of hope for patients of rare conditions

Today is World Rare Disease Day, which seeks to raise awareness and educate people about conditions that affect maybe 5 people in a population of 10,000.
This immunotherapy combination shrinks rare, neuroendocrine: Study

According to a new study, after using a combination of ipilimumab (6 weeks) and nivolumab (2 weeks) the results showed that 42 per cent of patients with the high-grade form of neuroendocrine carcinomas saw their tumours shrink partially or completely post treatment.
The Tree Man from Bangladesh needs more surgeries

'Tree man' syndrome is a condition in which extreme wart-like growths appear across the body which may lead to cancer later in life.
Your pet cat can give you this rare bacterial infection

Watch out cat lovers. Here's all you need to know about this rare bacterial infection that you may contract from your pet cats.
Delhi: 71-year-old gets treated for a rare brain disease

A new technique for restoration of brain circulation and prevention of catastrophic stroke at a Delhi hospital has saved the life of a 71-year-old.
Sushi: Man undergoes amputation after he catches a rare 'flesh-eating' infection

If you love having raw seafood and suffer from a few health conditions, you might want to know this- A 71-year-old caught an infection hours after he had his favourite sushi. This infection led him to get his hand amputated.
Gurgaon: 2-year-old from Tajikistan gets treated from a rare and complicated condition

Baby Maryam from Tajikistan was born with a condition that caused her skull to swell. This complicated condition was treated at Fortis Gurgaon.
Have you heard about ‘Gaucher?’ Here is all that you need to know about this rare disease

It is a genetic condition wherein waste material gets deposited and builds up in different organs and bones of the body.
Reviewing first year of National Policy for Treatment of Rare Diseases

The Ministry of Health & Family Welfare (MoH&FW), in 2017, took a landmark step by approving the National Policy for Treatment of Rare Diseases.
ORDI appeals to state governments to implement rare disease policy

Organisation for Rare Disease India (ORDI), a non-profit patient association focuses on improving the health of patients with rare diseases.
Mystery behind rare bone disorder cracked

A new research has found that a certain gene mutation causes 'dripping candle wax' bone disease.
Irrfan Khan reveals that he is diagnosed with neuroendocrine tumour

Bollywood star Irrfan Khan on Friday revealed he has been diagnosed with neuroendocrine tumour and is going out of the country for treatment.
Irrfan Khan's wife says her partner is facing his health scare -- a "rare disease" -- like a "warrior"

Like Irrfan, his wife, producer Sutapa Sikdar, too has urged people not to speculate about his condition.
Mumbai: Doctors pull out 760g of hair from woman's stomach

She was addicted to pulling out her own hair and eating it.

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Devendra Fadnavis thanks PM Modi for tax relief on life-saving drug for 5-month-old Teera

Two brothers with Hunter Syndrome move Delhi High Court seeking free treatment

Bizarre: Progeria can make a child of 8 look like an 80-year-old

Bizarre: Walking corpse syndrome will make you believe that you are a zombie

Bizarre: If you have Proteus syndrome, you may have grooves in your skin and disproportional limbs

Bizarre: Charles Bonnet Syndrome can take you to a fantasy world of weird animals and light flashes

Today is World Rare Disease Day: Research brings new ray of hope for patients of rare conditions

This immunotherapy combination shrinks rare, neuroendocrine: Study

The Tree Man from Bangladesh needs more surgeries

Your pet cat can give you this rare bacterial infection

Delhi: 71-year-old gets treated for a rare brain disease

Sushi: Man undergoes amputation after he catches a rare 'flesh-eating' infection

Gurgaon: 2-year-old from Tajikistan gets treated from a rare and complicated condition

Have you heard about ‘Gaucher?’ Here is all that you need to know about this rare disease

Reviewing first year of National Policy for Treatment of Rare Diseases

ORDI appeals to state governments to implement rare disease policy

Mystery behind rare bone disorder cracked

Irrfan Khan reveals that he is diagnosed with neuroendocrine tumour

Irrfan Khan's wife says her partner is facing his health scare -- a "rare disease" -- like a "warrior"

Mumbai: Doctors pull out 760g of hair from woman's stomach

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