Editorial Team
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On April 17, 2018, the global bleeding disorders community and the World Federation of Hemophilia (WFH) will
come together to promote and encourage Sharing Knowledge and the role it plays in building a stronger
community.
World Hemophilia Day is an opportunity to help people with bleeding disorders live healthier, longer and more
productive lives by educating and empowering them through knowledge sharing, information exchanges,
education, and training. This is possible because the bleeding disorders community is rich with experience and
wisdom that can help increase awareness and improve access to care and treatment.
World Hemophilia Day is a wonderful opportunity for our community to make its presence felt, explains Alain
Weill, President of the WFH. Our focus this year is on Sharing Knowledge because we are convinced that
knowledge and education are key drivers in stronger support for patients in our community. The WFH has a
long history of collecting data and sharing knowledge. The WFH World Bleeding Disorders Registry (WBDR) is
an example of how data collection will be used to advance the understanding and care of people with
hemophilia worldwide. An accessible patient registry strengthens our capacity to identify, diagnose, treat, and
care for people living with hemophilia and other rare inherited bleeding disorders Here are precautions every haemophiliac should take.
In addition to the WBDR, the WFH Annual Global Survey collects basic demographic information and data on
access to care and treatment products in order to provide hemophilia organizations, hemophilia treatment
centres and health officials with useful information to support efforts to improve or sustain the care of people
with bleeding disorders. Read about interesting facts about hemophilia.
To ensure all members of the bleeding disorder community have access to important clinical and patient-focused
information, the WFH developed the WFH eLearning Platform. The platform features more than 500
important resources in six languages including guides, fact sheets, videos, articles, games, and interactive
modules that are downloadable for free, and are well-suited for any learning style or area of interest.
World Hemophilia Day 2018 activities include a global campaign to light up landmarks around the world in red
as has been done so successfully in the past. Members of the community, partners and national member
organizations have come together so that local landmarks will Light up red on April 17.
Also, many people will light a red light in their home or office in an individual effort to raise awareness in their immediate vicinity.
Source: Press release
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