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Aimed at creating better awareness and knowledge among the haemophilic community and the public, an awareness walk cum event HAEMOutsav 2014 was organised here Tuesday. An initiative of the Haemophilia Centre of the Delhi government at the Maulana Azad Medical College (MAMC) and the Lok Nayak hospital, the walk from Rajghat till MAMC brought together members of the community, with the aim of instilling a sense of confidence and participation among them.
'There still exists lacuna when it comes to awareness about the disease. But all patients should get themselves treated on time so that this disease does not become a barrier for them,' Abhilash Dali, a 32-year-old patient of haemophilia, who works with the Haemophilia Federation of India, told . The event also marked the launch of One Country, One Treatment - a programme that makes haemophilia treatment available, accessible and affordable across the country. (Read: Are you aware about the haemophilia disease?)
HAEMOutsav 2014 also included performances by the haemophilia community, and a quiz about the disease. Haemophilia is a congenital lifelong bleeding disorder that prevents the blood from clotting properly, leading to internal bleeding in patients, mostly in the joints, muscles and vital organs like the brain. (Read: Understanding the causes and genetic inheritance of haemophilia)
Haemophilia doesn't just mean bleeding externally: Haemophilia is a blood clotting disorder that can cause bleeding internally as well as externally. What this means that a person doesn't have to have a cut or scratch to bleed out, even a simple fall without any external signs can cause damage, because the person is likely to bleed internally, causing damage to the internal organs.
Haemophilia can cause other conditions: Due to the fact that the disease causes bleeding internally , it can lead to a number of conditions. Some of them are: Damage of the muscles of the joints due to excess blood pooling in them, bleeding in the head causing brain damage, damage to organs and death. (Read: Facts about haemophilia you should know)
With inputs from IANS
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